Freya in the Whitsunday's last year

Freya in the Whitsunday's last year

Tuesday, September 7, 2010

The hard work begins

Freya is now under the care of the Pediatric Rehabilitation Unit.  We have been given her weekly timetable which includes daily sessions with the physiotherapists, the OT, the speech therapist, the play and music therapists - so many therapists, and all of them lovely young women with endless enthusiasm, patience and kindness.

Freya is still battling a couple of infections but she is much more awake, brighter and beginning to be more like her old self.  She is making (bad) jokes, and being very charming to the nurses by telling each new nurse she sees how much she loves their hair (don't ask me why), but the compliment goes down a treat each time. We are also seeing more of her smile, which at this early stage is very lop-sided as a result of the surgery.  This asymmetry will correct in time with the help of the speech therapitst.

We saw Freya's neurosurgeon Wirginia Maixner yesterday who explained that movement is returning early to Freya's left leg first because the encephalitis had infiltrated the part of her right hemsiphere that controls the left leg some time ago.  This meant that her left hemisphere (now her only functioning hemisphere) was already doing some of the left leg work for it's diseased counterpart.  As the encephaltiis hadn't attacked the areas of the her brain controlling her arm, regaining some arm function will take longer and be a harder challenge.

4 comments:

  1. Now the work begins...... May jokes, smiles and giggles be a constant part of Freya's days. Thinking of you all.

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  2. Dear Freya ask Dad who we are, we have been following your amazing journey, think of all of you every day. Grandma and all the other learner bloggers has dragged me kicking and screaming into the world of bloggers. Sent a card then decided if Grandma can do it so can I.
    Go Grey Power!!! Quite an achievement for you and you don't even know me. Knowing your family you will be more than up to the task ahead.
    Look forward to your triumphs
    Love The Kiernan Clan

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  3. Freya,
    I miss you soooo much, you can't imagine!
    I'm very very very happy to hear that everything went well and that your ok! can't wait to visit you, probably this week end or sooner.
    MiSs YoU!!!!!!
    <3 EdItHJoHnStOn

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  4. Freya, like Edie, I miss you too. I miss you like breathing! I am so excited that I might get to see you for a few minutes today.

    I love your hair by the way, as you know. And as I know and by the way, you're a little charmer and your jokes are very funny.

    Love Auntie Patricia.

    ReplyDelete