Freya has continued to sleep most of today. Her sleep cycle seems to be way off - with more wakeful periods during the night than during the day. Wirginia has described Freya's post-surgery brain as "scrambled" and it will need to take time for her circadian rhythms to reset (hopefully not too long!). Her brain is also firing off mixed messages about feeling on her left hand side. Freya says she can feel touch on her arm and leg, even when they are not being touched. Again, this should settle over the next few days. Another deficit Freya has suffered as a result of the surgery is permanent loss of peripheral vision in both eyes. Apparently, children accomodate this loss quite quickly by learning to turn their heads to see what they can no longer see in these visual fields. It will however, be another major adjustment she will need to make.
If all goes well and she continues to be able to keep up her fluid intake, the central line will be removed tomorrow. This will be great, and definitely give Freya more movement in her neck and make her feel more comfortable.
Hang in there Freya! All of the lines will be at soon and you will up and around. We are with you.
ReplyDeleteThe Wohlbergs
Thinking of you this morning gorgeous Frey. And every day. Sending you well wishes and good vibes and lots of love. I just can't wait until I see you again, my beautiful, brave little niece.
ReplyDeleteSleep well Freya, and know that we're all with you on your journey.
Lots of love from Auntie Patricia
Hi Freya, there are lots of pink blossom trees in our street, and some gorgeous magnolias in bloom too. We hope Spring brings you and your mum and dad plenty of new energy. It is very kind of Carolyn and Anthony to keep us up to date with your progress when so much is happening. Thinking of you and sending you our love and all the best wishes,
ReplyDeleteBec, Mark, Tim and Jess
Hi Freya, Carolyn, Anthony and Ella,
ReplyDeleteWe are thinking of you as always. Keep being brave and strong. It's great news that you will have the line removed. Anything that will make you feel more comfortable is great.
Hang in there darling,
Love Monique, Geoff, Bridget, Sam and Anna.