On the recommendation of Freya's neurologists, we have had a very quiet weekend. After a week of her sleeping very badly at night, the doctors have declared that her left hemisphere is "over-stimulated" and struggling to cope with all the extra connections it is needing to make to take over the tasks of her non-functioning right hemisphere. Her left hemisphere is firing and not letting her calm and settle enough to get a good night's sleep, despite medication. Even activities such as watching TV, listening to music or books were not recommended this weekend, as her brain needs the necessary down time to allow the rewiring to occur. Unfortunately, this means we will be putting off visitors for a little while longer too. In itself, the stimulation of the OT and physio is enormous at this early post surgery stage.
On another note, one of the right brain functions that we were told does not always transfer well from the right to the left hemisphere is facial recognition. Some children who have had a right hemipherectomy will always struggle to recognise unfamiliar faces and have to develop compensating strategies to remember people they do not see regularly. It is already clear that Freya's left hemisphere has no such problems - despite a rotating roster of about 20 or more nurses, Freya remembers the names of all of them. When Anthony asked her whether she recognised them by their voices or their faces, she replied "their faces of course".
Dear Freya
ReplyDeleteyou are amazing and making what seems remarkable progress given what trauma your "young Brain" is dealing with. I do not think I could ever remember the names of so many different nurses and doctors,=. I am sure you are fighting so hard to get back on track and out of hospital you are working overtime. Hope to see you soon, if and when visitors are allowed
Veronica and family
Good morning young Freya,
ReplyDeleteI hope your weekend was quiet enough for you to get some much deserved sweet dreaming last night. I know it gets a bit boring now but don't worry, once that bright little left brain gets itself properly sorted there will be lots of fun and play times again.
Keep up the great work Frey. You're amazing!
Love from Auntie Patricia xxx
Dear Freya,
ReplyDeleteI hope that you managed to have more sleep last night and that you begin to sleep better each night. Don't worry about anything just rest as much as you can.
You will get better soon.
Love Grandma xxxxxxxxxx
Freya, Take it easy, beautiful girl!! Get your rest and dream about the great things you will do without having to worry about seizures.
ReplyDeleteCarolyn and Anthony, I hope you have been able to also get some rest.
Love and best wishes - Da Payne Family
Hey Freya, I did not come and visit you this week as I have a bad head cold. But I am thinking of you all the time. You are making wonderful progress
ReplyDeleteLove
George
Hi Freya,
ReplyDeleteI'm missing you so much right now!!!
I hope I can come and visit you again soon!
love
Edith Johnston